THE ICPCN IS PROUD TO PARTNER WITH CARDIFF UNIVERSITY
FOR THE 5TH INTERNATIONAL CARDIFF CONFERENCE
ON PAEDITARIC PALLIATIVE CARE
- Face to Face with Interface -
Letter of welcome from Dr Richard Hain
Chairman of the Organising and Academic Committee
On behalf of the Organising Committee I am delighted to invite you to the 5th International Cardiff Conference on Paediatric Palliative Care 2010 - to be held in Cardiff (UK), between 6-8 July 2010.
Perhaps the greatest challenge to our skills in working together comes, not from other colleagues in palliative care, but when we come up against other specialties. On the face of it, the philosophies of paediatric and neonatal intensive care, for example, are utterly at odds with those of palliative care. On the one hand, endless interventions apparently interminably prolonging life. On the other, a philosophy of care predicated on the assumption that premature death is inevitable.
And yet, it is often these very teams who most clearly recognise the need to work alongside paediatric palliative care professionals, and whose families could most benefit from joint working.
The theme of the 2010 Cardiff Conference in Paediatric Palliative Care is: ‘Face to Face with Interface’.
Cardiff, capital city of Wales, is the youngest capital in Europe. It is internationally recognised as hosting one of Britain's foremost research-intensive universities. With its 750 miles of coastline, 641 castles and 3 national parks, it is a remarkable venue for this event.
We hope to see you in Cardiff in 2010.
Dr Richard Hain
Chairman of the PPC2010 Organising and Academic Committee
CONFERENCE INFORMATION
Conference Venue
There has been a change in the venue and the conference will now be held in the Main Building, Cardiff University (No 39 on the University Location Guide).
The venue is a short walk from the city centre and hotels. There is a train station opposite the building and a frequent bus service from the city centre which stops outside the building.Download 2010 Location Guide, Inner
Download 2010 Location Guide, Outer
Download the Joining Instructions
Cost of Registration
Full registration fee of £199.00 will cover attendance, registration pack, book of abstracts, lunches and refreshment breaks and badge.
Registration deadline is Monday 21 June 2010. Terms and conditions can be found on the Registration form.
Conference Dinner
The conference dinner is an optional event with details included on the registration form.
A gala dinner will be held at the Hilton Hotel on the evening of Wednesday.
Guests will be asked to arrive at 19.30. The cost will be £50.00.
Conference Language
The official language for the conference is English.
Download the Registration form as a fillable pdf
PROGRAMME INFORMATION
All oral sessions, apart from plenary speakers will be of 30 minutes duration and should include time for questions.
Workshops will be for a longer time as indicated on the programme.
If you require further information please contact the conference management team on +44 (0) 29 2087 5508 or email us at PPC2010@cardiff.ac.uk
Biographies of Invited Speakers
Dr. Eva Bergsträsser, Univervsitäts-Kinderspital, Zurich, Switzerland
Dr. Eva Bergsträsser has been trained in Germany and Switzerland in general paediatrics and paediatric oncology and haematology. For several years she is working as a senior physician in paediatric oncology and haematology at the University Children’s Hospital in Zurich. During the last several years she has specialized in the area of palliative care in children where she has attended a postgraduate course in palliative care at the University of Cardiff, Wales. In 2009 she finished the course with a Masters of Science with a thesis in which she started to develop an validate an instrument to facilitate the identification of patients requiring paediatric palliative care. For her efforts to build up awareness for palliative care in children in Switzerland she was honoured in 2006 with a prestigious prize of the Swiss Pediatric Society (Fanconi Prize).
Dr Joanne Wolfe, Director, Pediatric Palliative Care Children’s Hospital, Boston, USA
Dr. Joanne Wolfe is the Division Chief of Pediatric Palliative Care in the Department of Psychosocial Oncology and Palliative Care at the Dana-Farber Cancer Institute (DFCI) and the Director of Palliative Care at Children’s Hospital Boston (CHB). She is an Assistant Professor of Pediatrics at Harvard Medical School. She holds an MD degree (1990) from Harvard Medical School and an MPH (1998) from the Harvard School of Public Health. Her research focuses on understanding and easing suffering in children with life-threatening illnesses.
Sarah Barclay, Medical Journalist and Mediator
Sarah Barclay is a medical journalist with more than 20 years experience working at a senior level in the BBC – as a reporter for the Panorama programme - and national UK news media. In 2005 she won the Royal Television Society Specialist Journalist of the Year award for a documentary on the development of very premature babies and in 2006, was nominated with other members of a BBC production team for a BAFTA for “Undercover Nurse” a programme exposing inadequacies in the care of elderly people.
Sarah has written for many UK national newspapers and magazines including The Observer, Sunday Telegraph, Spectator and Radio Times and is the author of Jaymee: The Story of Child B (Viking Penguin, Harmondsworth) published in 1996.
Sarah has an MA in medical ethics and law from King’s College London, is a Trustee of the UK Clinical Ethics Network and has recently been appointed vice-chair of the Clinical Ethics Committee at Great Ormond Street Hospital in London.
In the autumn of 2005, Sarah took voluntary redundancy from the BBC and went with her family to live in Barcelona where she ran a voluntary organization for women. She returned to live in London last August and has recently qualified as an accredited mediator.
Sarah is working on setting up an independent paediatric mediation and decision-support scheme which would be available to clinicians, patients and families.
Dr Rene Albertyn, Red Cross Children’s Hospital, Cape Town, South Africa
Rene Albertyn is a researcher in the department of Paediatric Surgery at the Red Cross Children’s Hospital in Cape Town, South Africa. In addition, she is also clinically involved in the Pain Management Unit of the hospital. In 2002 Rene obtained her PhD from the University of Cape Town Medical School in Pain Management and Assessment Strategies. She developed a Burn Pain and Anxiety Scale for children (BOPAS), which led to her PhD degree. Rene is involved in ongoing research and conducts weekly lectures on hospital palliative care to medical students. She regularly gives talks on her subject both locally and abroad. Rene has extensive experience and vast knowledge on the evaluation, assessment and management of pain in children.
Prof. The Baroness Ilora Finlay of Llandaff- Cardiff University &Velindre NHS Trust & Marie Curie Cancer Care, Cardiff, Wales
Prof. The Baroness Ilora Finlay of Llandaff is a Professor (Cardiff University) and Consultant in Palliative Medicine. Prof Finlay established the World Renowned Diploma MSc in Palliative Medicine at Cardiff University, which now also has a paediatric palliative medicine option to it. She was instrumental is setting up an academic post in paediatric palliative care in Wales. Now chairing Palliative Care Strategy Implementation Board for Wales
Elevated to a Peerage as Baroness Finlay of Llandaff – The House of Lords - 10th July 2001
Welsh Woman of the Year 1996-97
Named Founder Member of Cancer Research UK charity - January 2002
President of Royal Society of Medicine, London - July 2006-2008
National President, Medical Women’s Federation - May 2001-2002
Member of Select Committee on Science and Technology – Member of enquiries
‘Fighting infection’ - 2003
‘Setting the Regional Agenda’ - 2003
‘Pandemic influenza’ - 2005
‘Science and Heritage’ - 2006
‘Allergies’ - 2007 (chairman)
Member of Select Committee on House of Lords Select Committee on:
Assisted Dying for the Terminally Ill Bill - 2005
President, Association of Chartered Physiotherapists - Dec 2001 onwards
President, MS Cymru - October 2003 onwards
President, Cambrian Society - Nov 2001 onwards
Hon Vice President Marie Curie Cancer Care - Sept 2005 onwards
Vice Dean School of Medicine Cardiff University - 2000- 2005
Visiting Professorship (Johanna Bijtel Chair) to Gröningen University - 2000-2002
Honorary Professor in Palliative Medicine, Groningen University - Feb 2006 onwards
Visiting Professorship University of Melbourne, Australia - 1995-2000
Cicely Saunders Foundation, International scientific expert panel member - Aug 2001 onwards
Velindre NHS Trust & Marie Curie Cancer Care) since 1987
Organising Committee
Dr Richard Hain - Cardiff University
LATCH Senior Lecturer in Paediatric Palliative Medicine
Department of Child Health
Cardiff University School of Medicine
Heath Campus
Cardiff CF14 3XN
Tel: +44 (0)29 2074 3373
Email: Taylorhe@cardiff.ac.uk
Joan Marston - International Children’s Paediatric Care Network (ICPCN)
Paediatric Palliative Care Manager for the Hospice Palliative Care Association of South Africa
Post Office Box 38785, Pinelands, 7430, South Africa
Tel: +27(0) 215312094/5 OR +27(0)822 964 367
Email: joan@hpca.co.za
Academic Committee
Dr Richard Hain - Chair
Joan Marston
Professor, The Baroness Finlay of Llandaff
Dr. Eva Bergsträsser
Dr. Joanne Wolfe
Sarah Barclay
Dr. Rene Albertyn
Conference Management Team
Su Hayward-Lewis & Emma Humphries
Campus Services Division
Cardiff University
Southgate House
PO Box 533
Cardiff
CF14 3XZ
Phone: + 44 (0)29 2087 5508
Fax: + 44 (0)29 2087 4990
Email: PPC2010@cardiff.ac.uk
ACCOMMODATION IN CARDIFF
Hilton Hotel
Delegates wishing to book into the Hilton Cardiff Hotel need to make these arrangements personally by visiting http://www.hilton.com/en/hi/groups/personalized/CWLHITW-GCARG-20100705/index.jhtml or phoning the Hotel on 029 20646300. Cost for bed and breakfast per night will be from £88.00.
Colum Hall - Cardiff University Campus
A University accommodation option is included on the registration form.
Sole occupancy en-suite bedrooms are available at Colum Hall (No 12 on the university map). Colum Hall is approximately a 10 minute walk to Main Building
A full cooked/continental breakfast will be available between 07.15 -08.30 on each day. Please note that this is basic student accommodation with shared kitchen facilities. Tea/coffee will be available in each kitchen. There are no televisions, radios or internet access available at this location. Rooms will be sold on a first come basis and will be serviced every three days.
Costs: Sole occupancy en-suite room with breakfast at £30.20 per night – booking details are included on your registration form. We anticipate that these rooms will be booked very quickly so please book early.
Download a copy of the North Campus Site Map showing location of Column Hall Accommodation.
Cardiff Hotels and Bed and Breakfast accommodation
There area number of hotels with a range of accommodation and costs available near to the city centre. For those with a more limited budget bed and breakfast accommodation is available in the Cathedral Road area and is a walk or short bus ride away from the city centre. For further information on accommodation available please visit www.visitcardiff.com
City centre hotels within 5-10 minutes from the conference venue at the Hilton include:
Park Plaza, Greyfriars Road www.parkplazacardiff.com
Parc Hotel, Park Place www.thistle.com
Holiday Inn, Castle Street www.holidayinn.co.uk
Download map of Inner City and University
TRAVEL INFORMATION
High-speed InterCity trains link most cities with
Rail Enquiries
• National Rail Enquiries: 08457 48 49 50
• National Rail Enquiries from overseas (International rates apply): +44 (0)20 7278 5240
• National Rail Enquiries Textphone: 0845 60 50 600
• Welsh language Rail Enquiries: 0845 60 40 500
• Traveline: www.traveline.org.uk for all your public transportation information.
• Network rail: www.networkrail.co.uk for train timetables and tickets.
There is a taxi rank outside Cardiff Central Station. The fare from Cardiff Central will depend on which hotel you have booked. Majority of hotels in the city centre are in walking distance.
Coach
National Express Coaches: www.nationalexpress.com operates low cost coach services to Cardiff from cities throughout the UK, including a flightlink service from Heathrow and Gatwick airports.
Car
Cardiff is right on the national motorway system. The M4 runs through the north of the city, making London a comfortable drive away. From the Midlands, the North of England and Scotland it is a straightforward drive via the M6, M5 and M50/M4. From the South and South West of England the approach is by M5 and M4. Access from West Wales is by M4.
Form more information visit: www.transportdirect.info.
Air
Cardiff is served by its own international airport with regular direct flights from the U.K. and other European destinations. Cardiff International Airport www.cwlfly.com is 11 miles from the city centre. Tel: +44 (0) 1446 711 111
From/To Cardiff Airport
Taxis
Checker cars: official taxi operator for the airport, located outside the arrivals hall to the right as you exit the building.Taxis are available upon arrival, or can be booked in advance by e-mailing cardiff@checkercars.com This e-mail address is being protected from spambots. You need JavaScript enabled to view it or calling +44 (0)1446 711747. Checker cars are open 24 hours a day, seven days a week.
Bookable Transport
Flightlink Wales: Pre-book a shared airport shuttle or chauffeur driven executive car service prior to your arrival in Cardiff. Contact +44 (0)29 20 253555, sales@flightlinkwales.com Website: www.flightlinkwales.com
Airport Travel Wales: Transfers to and from all UK Airports, short hire and daily hire. Contact +44 (0) 2920 210 510, www.airporttravelwales.co.uk
Cardiff Airport Airlines:
KLM: www.klm.com International airline flying direct to Cardiff from Amsterdam, with connections from the rest of the world
Bmibaby: www.bmibaby.com Low-cost airline with direct flights from Europe, including Northern Ireland, Scotland, Spain, Portugal, Switzerland
Aer Arann: www.aerarann.com Fly from Dublin and Cork
Eastern Airlines: www.easternairways.com Fly from Newcastle
Thomsonfly: www.thomsonfly.co.uk Low-cost airline, fly from Barcelona and 28 other destinations
Flybe: www.flybe.com Fly from Paris, Belfast City, Newcastle, Edinburgh, Aberdeen & Glasgow
Highland Airways: www.highlandairways.co.uk Fly from Anglesey (North Wales)
Thomas Cook Airlines: www.thomascookairlines.co.uk Fly from various destinations
Other Airports
Bristol International Airport is only 1 hour away, with Continental Airlines flying direct from the States as well as EasyJet low-cost airline providing flights from Europe, including Germany, and within the UK.
Birmingham, Manchester and London Airports (Heathrow, Gatwick, Stansted and Luton) are also all easily accessible to Cardiff by high-speed InterCity train or coach.
Bristol: www.bristolairport.co.uk
London: www.baa.com
Birmingham: www.bhx.co.uk
Manchester: www.manchesterairport.co.uk
GENERAL INFORMATION
Passports and Visas
If documentation or a letter of confirmation is required in order to attend the event, please contact the workshop organiser for support of a visa application. Useful information about the documents needed to enter the United Kingdom can be found in the homepage of the UK Home Office: http://www.homeoffice.gov.uk/passports-and-immigration.
Transportation
Cardiff City Council provides an extended list of transport and travel directions to Cardiff at the following link.
Currency
The official currency in the UK is the Pound Sterling (GBP). Usual credit cards (Mastercard, American Express, VISA) are accepted in hotels, department stores and restaurants. Currently (Feb 2010) the exchange rate is approx. 1 gbp ="1.15" EUR, 1 gbp ="1.59" USD
Timezone
July in Wales is sometimes unpredictable and it can be quite rainy. Participants are advised to check the actual weather conditions on http://uk.weather.com.
Electricity
Power supply is 230 V AC, 50 Hz. It is recommended to have a suitable plug-in for British standard.
Liability
The Organising Committee does not accept liability for personal medical expenses, travel expenses, losses of whatever nature incurred by participants and/or accompanying persons. Participants should therefore make their own insurance arrangements.
Visiting Cardiff and Wales
Cardiff is the gateway to Southern Wales, with stunning country side and pristine National Parks only a short journey away. The Welsh capital began life as a Roman fort, and the whimsical 11th-century Cardiff Castle stands on the same site. The modern city is a burgeoning center for art and music. Excellent restaurants, lively bars and hip boutiques line Mermaid Quay along Cardiff Bay, and a collection of cosmopolitan hotels are clustered in the city. The National History Museum, detailing the country's social history, is Wales' most visited attraction. Cardiff is an excellent base for exploring South Wales.
Find out more on tourism in Cardiff and Wales
