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Help us to make the voices of children heard
World Hospice and Palliative Care Day is a unified day of action to celebrate and support hospice and palliative care around the world. The theme for World Day 2011, which takes place on 8 October, is "Many diseases, many lives, many voices - palliative care for non-communicable conditions". Voices for Hospices takes place on World Hospice and Palliative Care Day every two years. The objective of the event is to raise awareness for hospice and palliative care around the world by using the voice.
To mark World Hospice and Palliative Care Day 2011, with Voices for Hospices on 8 October 2011, thousands of people in around 80 countries will be coming together at more than 1,000 events to celebrate, support and speak up about hospice and palliative care.
This year’s World Hospice and Palliative Care Day theme is ‘Many diseases, many lives, many voices.’
The ICPCN has decided to use this day to launch its latest publication, ‘Touching Rainbows - Acknowledging the child’s voice in palliative care.’ Through this book we have the privilege of hearing the voices of some of the many children whose lives, and those of their families, have been affected by life-threatening and life-limiting conditions.
The children tell their stories with honesty and openness, through stories, poems and pictures.
Children and their families from across the world share their experiences, either from the child or, when their own voice cannot be heard, from those who love them, such as their parents their siblings and at times the health professionals who care for them.
The stories, told at times in the child’s own language with an English translation, are inspirational. It is hoped they will touch and enrich the lives of many, encourage those travelling a similar path, and instill a sense of courage and joy, despite the many challenges and heartaches that accompany such a journey. These children and their families pass through many storms and dark days, but still aspire to reach out and touch the light and joy of the rainbow.
The Foreword is written by Sr Frances Dominica, the Founder of Helen and Douglas House, and of the modern children’s hospice movement and each story is beautifully and sensitively presented using photographs, original art and pictures.
Copies of this book will be distributed around the globe for advocacy purposes and can be bought through the ICPCN website. All proceeds from sales will be used for the printing of further copies.
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