ICPCN is managed by an International Steering Group, which represents all continents. Day to day administration of the website and membership is provided by the International Information Officer based in South Africa. ACT (Association for Children's Palliative Care) and the Children's Hospices UK have also played a key role in developing ICPCN, including
developing the website and its corporate identity.
The ICPCN is also
represented on the steering group of the Worldwide Palliative Care Alliance and
the Global Network of National Associations.
The head office of the ICPCN is in Cape Town, with an International Information Officer
co-ordinating the worldwide work of the ICPCN from South Africa.
Membership of the Steering Group
Joan Marston (South Africa) representing Africa Chair
Paediatric Palliative Care Manager for the Hospice Palliative Care Association of South Africa
Email: joan@hpca.co.za
Lizzie Chambers (UK) Joint Vice Chair
Chief Executive of ACT (UK)
Email: lizzie@act.org.uk
Barbara Gelb (UK) Joint Vice Chair
Chief Executive of Children's Hospices UK
Email: barbara@childhospice.org.uk
Dr Julia Downing (Uganda) representing the African Palliative Care Association (APCA)
Deputy Executive Director (APCA)
Email: julia.downing@apca.co.ug
Dr Delia Birtar (Romania) representing Eastern and Central Europe
Paediatrician, (Romania)
Email: birtadelia@yahoo.com
Dr Anna Garchakova (Belarus) representing Russia
Director of Belarusian Children's Hospice
Email: hospicepall@mail.belpak.by
Sue Huff (USA) representing North America
Director, Paediatrics at Home, John Hopkins Medicine
Email: shuff2@jhml.edu
Dr Rut Kiman (Argentina) representing Latin America
Chief Supportive and Palliative Care Group, Pediatric Department, National Institute of Health, (Argentina)
Email: rutiki@netizen.com.ar
Sabine Kraft (Germany) representing Western Europe
Director, Bundesverband Kinderhospiz (Germany)
Email: info@bundesverband-kinderhospiz.de
Dr Mary Ann Muckaden (India) representing Asia
Professor of Oncology, Tata Memorial Hospital, Mumbai (India)
Email: muckaden@usnl.net
Dr Susan Fowler-Kerry (Canada) representing Canada
Professor, College of Nursing, University of Saskatchewan, Canada.
Email: susan.fowler.kerry@usask.ca
Starship Children's Hospital, Aukland, New Zealand
Email: RossD@adhb.govt.nz
Avril Jackson (UK) Observer
Information officer, Hospice Information, (UK)
Email: avril@hospiceinformation.info
Mary Callaway (USA) Observer
Associate Director, Open Society Institute (USA)
Email: mcallaway@sorosny.org
Senior Executive, The Worldwide Palliative Care Alliance
Email: sconnor@thewpca.org
Sue Boucher (SA) Administrator
International Information Officer for ICPCN
Email:sue@icpcn.co.za
- Minutes of Mini Teleconference held on 6 November 2008
- Minutes of the Meeting of the ICPCN Steering Group held in Vienna on Wed 6 May 2009
- Minutes of the Steering Group Teleconference held on 27 August 2008
- Minutes of the Steering Group Teleconference held on 27 February 2009
- Minutes of the Steering Group Teleconference held on 27 November 2008
- Minutes of the Steering Group Teleconference held on 29 May 2008
- Minutes of the Steering Group Teleconference held on Thursday 26 November 2009
- Minutes of the Steering Group Teleconference held on Tues 30 June 2009