ICPCN Structure

ICPCN is a network of organisations and individuals working in children’s palliative care from all over the world. ICPCN is managed by a Board of Trustees, which represent all continents. 

The ICPCN International Board of Trustees meets quarterly to agree strategy and manage the ICPCN workplan.  It is headed by Joan Marston, Chief Executive Officer.  ICPCN has joint Chairs: Maryann Muckaden (India) Prof Rad Oncology and in charge of the Unit of Palliative Medicine at Tata Memorial Hospital, Mumbai and Barbara Gelb (UK), Chief Executive of Together for Short Lives.

Staff with their Contact details

Joan Marston
Chief Executive
Phone: +27 (0)822 964 367

Sue Boucher
International Information Officer
Phone: +27 (0)82 897 4420

Busi Nkosi
International Advocacy Officer
Phone: +27(0) 82 821 9057

Barbara Steel
Administration and Finance Officer
Phone: +27 (0) 082 557 8113

Prof Julia Downing
Education and Research Consultant for ICPCN 
Phone:  +44 (0)7751 879310

ICPCN is a membership organisation. Membership is free and you can join as an organisation or individual.  Anyone who either works in or has an interest in children’s palliative care can join ICPCN, all we ask is for you to sign up to ICPCN’s vision, aims, objectives and strategy.  Members do not have voting rights.


ICPCN members can register with ICPCN’s International Directory, join the ICPCN international discussion forum and post news, events or research abstracts on the ICPCN website, and join the campaign to ensure the voices of children with life-limiting or life-threatening conditions are heard, respected and acknowledged through the world.


  • Child in hospital

By joining ICPCN you will become part of the network of organisations and individuals working in children's palliative care from all over the world.

International Children's Palliative Care Network