CONFERENCE INFORMATION

Abstract submission is now closed

Registration Fees/Form
We are pleased to announce that the registration fee for PPC2012 is £220.00.  Download the registration form.  The form includes a university accommodation option.  Please note that this accommodation usually goes really quickly.  It is intended that confirmation of your registration and a scanned copy of your receipt/s be sent by email.  If you require the originals then you need to request this in advance otherwise they will be shredded.  

Wednesday 11th July at 18.00 - Early evening drinks and a live short musical and movement performance from children using palliative care via Rosetta Life - Free of charge
This will be held in the Viriamu Jones Gallery of the Main University Building from  around 6.00pm.  For more information on Rosetta Life go to http://www.rosettalife.org/

Thursday 12th July -  Book Launch during the lunchtime break -  Free of charge
Oxford University Press invites you to the launch of the "Oxford Textbook of Palliative Care in Children" (editors Goldman, A, Hain, R., Liben, S.) in the marquee.
Wine and mineral water will be offered .

Thursday 12th July at 19.30 - Pre Conference Dinner Drinks - Free of charge
This will be held in a university venue called Aberdare Hall (No 22 on the attached map) which is a few minutes walk from the conference venue.  During this event there will be a short performance by the Cowbridge Male Voice Choir.
Everyone is invited to the pre-dinner drinks event at no charge - there is option you will need to confirm on the registration form.

Thursday 12th July at 20.00 - Conference Dinner
This will also take place in Aberdare Hall after the pre dinner drinks.  There will be an informal three course dinner including wine.   Bring your dancing shoes as dinner will be followed by a Welsh Twmpath (equivalent to a barn dance or Irish Ceilidh).  Music and dance instructions to be supplied by a band called "Pluck and Squeeze" .  There should be plenty of time for everyone to do a bit of networking (if they have any breath left after dancing).  
If you would like to attend please complete the option on the registration form.  The cost will be £35.00.

Menu
Lightly spiced butternut squash soup topped with crème fraiche with Speciality bread roll
Supreme of Penclawdd chicken filled with mozzarella and sun dried tomato - vegetarian option to be advised
Parmentier potatoes
Courgettes and roasted peppers
Chocolate and orange torte served with vanilla cream
Coffee and handmade Welsh mints

Abstracts
The Forum thanks you for your submissions and is in the process of scoring these.  Due to the very high number of abstracts received this process is taking a longer time than usual and your patience is very much appreciated.  All abstract have been anonymised for the purposes of scoring by the Forum.

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Confirmed Invited Speakers

Myra Bluebond-Langer 

Professor Bluebond Langer has become the UK's first chair of paediatric palliative care at the UCL Institute of Child Health and Great Ormond Street Hospital.   

Professor Bluebond-Langner – whose new role is funded by the True Colours Trust – is a distinguished anthropologist whose early work on leukaemic children is regarded as marking an important change in the way children are studied and regarded by researchers.  Her recent studies of decision-making for children with cancer when standard therapy has failed broke new ground in approaches to the study of decision-making and the involvement of children in decision-making and research 

The Venerable Richard Seed - Archdeacon of York 

In 1980 Richard was invited to accept the Parish of St Mary’s Boston Spa, where he served for 19 years. During this time, he became Priest-in-Charge of Clifford, Thorp Arch and Walton, and also for a short time Rural Dean of New Ainsty. During his time in Boston Spa Richard was instrumental in the establishment of Martin House Children’s Hospice, which now has a tremendous ministry across Yorkshire, to families who have children with life-threatening conditions.

In 1999, Archbishop David Hope invited Richard to become Archdeacon of York, succeeding the Venerable George Austin. He is married to Jane and has four grown up children. 

Professor Wilf McSherry

Wilfred McSherry is Professor in Dignity of Care for Older People at the Centre for Practice and Service Improvement, Faculty of Health, Staffordshire University and Shrewsbury and Telford Hospital NHS Trust. He is a Vice President of the British Association for the Study of Spirituality and also a part time Professor at Haraldsplass Deaconess University College, Bergen, Norway.

Professor McSherry has an international reputation for his work in the area of spirituality and spiritual care. He has lead on the Royal College of Nursing spirituality work stream and was Chair of the RCN Spirituality Task and Finish Group. He is the author of 'Making Sense of Spirituality in Nursing and Health Care Practice' 2006 and a co-editor of ‘Spiritual Assessment in Healthcare Practice’ 2010.

He has co-authored several papers on spirituality and children for example ‘How do children express their spiritual needs?’ published in the journal ‘Paediatric Nursing’ in 2007.  In the context of spiritual needs of children and families he is a contributor to the popular text ‘Palliative Care for Children and Families – An Interdisciplinary Approach’, 2009.

Professor McSherry completed his doctoral studies ‘The Meaning of Spirituality and Spiritual Care: An investigation of health care professionals, patients and public’s perceptions’ in 2005.  Whilst working at the University of Hull, along with colleagues set up the Centre for Spirituality Studies.

His most recent work ‘Care in nursing Principles, Values and Skills’ was published by Oxford University Press February 2012. Professor McSherry's career in nursing continues to involve a combination of practice, education and research."

Dr. Pradnya Talawadekar 

Dr Talawadekar is the Country Co- ordinator for the Children's Palliative Care Project with the Indian Association of Palliative Care in Mumbai, Maharashtra, India. 

The project involves setting up of three sites for the service delivery of Children's Palliative Care in Maharashtra and advocacy, trainings, morphine availability and the empowerment of children with life limiting conditions and their families and graduated in Ayurvedic Medicine from Mumbai University in 1989. 

She is a member of the Ethics Committees of Tata Memorial Hospital, Prince Aly Khan Hospital, MRC- Kasturba Health Society and KEM Hospital (Alt. Member), Mumbai; a Medico-Legal Expert and has been working in the field of HIV/AIDS and Women's empowerment since 1999.  She has also participated in writing ‘Manual for the clinical care of HIV-infected pregnant women' in collaboration with Dr John Lambert of the University of Maryland, USA and worked in the field of herbal clinical research in diabetes and skin diseases. 

Jonathan Montgomery

Jonathan Montgomery is Chair of Hampshire Primary Care Trust and Professor of Health Care Law at the University of Southampton.  He has served on NHS Trust Boards since 1992.  He was a member of the Commission of Inquiry into the Future of Adult Social Care, whose report Getting Personal: a fair deal for better care and support was published by Hampshire County Council in 2008.  He represents the NHS on the Hampshire Senate and is deputy Chair of the transitional Health and Wellbeing Board for the county.

Nationally, he Chairs the Nuffield Council on Bioethics, the Advisory Committee on Clinical Excellence Awards and the Steering Committee for the UK Brain Banks Network.  He is also a member of the Committee on the Ethical Aspects of Pandemic Influenza.  From 2009-2012 he was Chair of the Human Genetics Commission and he sat on the Organ Donation Task Force for its work on presumed consent.

In April 2005 he was elected to honorary fellowship of the Royal College of Paediatrics and Child Health. 

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Conference Venue

The conference will be held at Cardiff University, Main Building (No 39 on the attached map). The conference will commence on Wednesday 11th July and end Friday 13th July 2012. The venue is a short walk from the city centre and hotels.  There is a train station opposite the building and a frequent bus service from the city centre which stops outside the building.

Registration Fees and indicative programme
Further details will follow. If, in the meantime, we can help with an enquiry please contact the conference management team on:
+44 (0) 29 2087 5508 or email us at PPC2012@cardiff.ac.uk
 

Event Catering and Conference Dinner 

We are planning to have lunch and refreshments in a marquee on the front lawn of the University. This option will provide plenty of seating on round tables during lunch.  Poster sessions will also take place in the marquee. 

The conference dinner will take place in Aberdare Hall which is a university dining venue a 15 minute walk from the city centre and five minutes from the main conference venue. The evening will include a short performance by a local male voice choir.  

Conference Language
The official language for the conference is English.

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Organising Committee

Dr Richard Hain
LATCH Senior Lecturer in Paediatric Palliative Medicine/
Lead Clinician, Welsh Managed Clinical Network for Paediatric Palliative Medicine
Department of Child Health
Room 1F31 Cardigan House
Heath Park,
Cardiff, CF14 4XN
Tel: +44 (0)29 2074 3373
Email: Taylorhe@cardiff.ac.uk

Joan Marston
International Children’s Paediatric Care Network (ICPCN)
Chief Executive
ICPCN is administered by HPCA (Hospice Palliative Care Association of South Africa).
Post Office Box 38785, Pinelands, 7430, South Africa
Tel: +27(0) 215312094/5 OR +27(0)822 964 367
Email: joan.marston@icpcn.co.za or joan.icpcn@gmail.com

Dr Joanne Griffiths
Consultant Community Child Health and Paediatric Palliative Medicine.
Welsh Managed Clinical Network for Paediatric Palliative Medicine
ABMU Health Board
Central Clinic
21 Orchard Street
Swansea, SA1 5AT
Tel: +44 (0)179 2516481
Email: Jo.Griffiths@wales.nhs.uk

Dr Victoria Lidstone, BM, FRCP
All Wales Clinical Lead for Transition in Palliative Care
Managed Clinical Network in Paediatric Palliative Medicine
Department of Child Health
University Hospital of Wales
Cardiff, CF14 4XW
Tel: 44+ (0)29 2074 3373
Email: Victoria.Lidstone@Wales.nhs.uk

Partners of PPC2012
The International Children’s Palliative Care Network (ICPCN) is an “one-stop” international resource providing information about paediatric palliative care services for professionals, caregivers and families. It raises awareness of the worldwide need for children’s palliative care services, promotes research to support and underpin its information and policy work and raises the profile of children’s palliative care through advocacy. The ICPCN shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care.

Conference Management
Su Hayward-Lewis
Senior Conference Officer,
Campus Services Division
Cardiff University
Conference Office
PO Box 533
Cardiff CF14 3XZ
Tel: +44 (0)29 2087 5508
Email: PPC2012@cardiff.ac.uk

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ACCOMMODATION IN CARDIFF

Colum Hall - Cardiff University Campus
A University accommodation option is included on the registration form.
Sole occupancy en-suite bedrooms are available at Colum Hall (No 12 on the university map).  Colum Hall is approximately a 10 minute walk to Main Building
A full cooked/continental breakfast will be available between 07.15 -08.30 on each day.   Please note that this is basic student accommodation with shared kitchen facilities.  Tea/coffee will be available in each kitchen.  There are no televisions, radios or internet access available at this location.  Rooms will be sold on a first come basis and will be serviced every three days. 

Download a copy of the North Campus Site Map showing location of Column Hall Accommodation.

Cardiff Hotels and Bed and Breakfast accommodation

There area number of hotels with a range of accommodation and costs available near to the city centre. For those with a more limited budget bed and breakfast accommodation is available in the Cathedral Road area and is a walk or short bus ride away from the city centre.  For further information on accommodation available please visit  www.visitcardiff.com

City centre hotels within 5-10 minutes from the conference venue include:

Hilton Hotel            www.hilton.co.uk/cardiff/
Park Plaza, Greyfriars Road     www.parkplazacardiff.com
Parc Hotel, Park Place          www.thistle.com
Holiday Inn, Castle Street      www.holidayinn.co.uk

Download map of Inner City and University

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TRAVEL INFORMATION

Rail
High-speed InterCity trains link most cities with Cardiff. The journey time from London Paddington to Cardiff is under two hours and leaves every 30 minutes during the day.

Rail Enquiries
•  National Rail Enquiries: 08457 48 49 50
•  National Rail Enquiries from overseas (International rates apply): +44 (0)20 7278 5240
•  National Rail Enquiries Textphone: 0845 60 50 600
•  Welsh language Rail Enquiries: 0845 60 40 500
•  Traveline: www.traveline.org.uk for all your public transportation information.
•  Network rail: www.networkrail.co.uk for train timetables and tickets.
 
There is a taxi rank outside Cardiff Central Station.  The fare from Cardiff Central will depend on which hotel you have booked. Majority of hotels in the city centre are in walking distance.

Coach
National Express Coaches: www.nationalexpress.com operates low cost coach services to Cardiff from cities throughout the UK, including a flightlink service from Heathrow and Gatwick airports.

Car
Cardiff is right on the national motorway system. The M4 runs through the north of the city, making London a comfortable drive away. From the Midlands, the North of England and Scotland it is a straightforward drive via the M6, M5 and M50/M4. From the South and South West of England the approach is by M5 and M4. Access from West Wales is by M4.
Form more information visit: www.transportdirect.info.

Air
Cardiff is served by its own international airport with regular direct flights from the U.K. and other European destinations.   Cardiff International Airport www.cwlfly.com is 11 miles from the city centre. Tel: +44 (0) 1446 711 111

From/To Cardiff Airport
Taxis
Checker cars: official taxi operator for the airport, located outside the arrivals hall to the right as you exit the building.Taxis are available upon arrival, or can be booked in advance by e-mailing cardiff@checkercars.com This e-mail address is being protected from spambots. You need JavaScript enabled to view it or calling +44 (0)1446 711747.   Checker cars are open 24 hours a day, seven days a week.

Bookable Transport
Flightlink Wales: Pre-book a shared airport shuttle or chauffeur driven executive car service prior to your arrival in Cardiff. Contact +44 (0)29 20 253555, [email protected]   Website:  www.flightlinkwales.com

Airport Travel Wales: Transfers to and from all UK Airports, short hire and daily hire. Contact +44 (0) 2920 210 510, www.airporttravelwales.co.uk Visit Cardiff website will has information on what to see and do whilst you are in Cardiff.

Cardiff Airport Airlines:

KLM: www.klm.com International airline flying direct to Cardiff from Amsterdam, with connections from the rest of the world

Bmibaby: www.bmibaby.com Low-cost airline with direct flights from Europe, including Northern Ireland, Scotland, Spain, Portugal, Switzerland

Aer Arann: www.aerarann.com Fly from Dublin and Cork

Eastern Airlines: www.easternairways.com Fly from Newcastle

Thomsonfly: www.thomsonfly.co.uk Low-cost airline, fly from Barcelona and 28 other destinations

Flybe: www.flybe.com Fly from Paris, Belfast City, Newcastle, Edinburgh, Aberdeen & Glasgow

Highland Airways: www.highlandairways.co.uk Fly from Anglesey (North Wales)

Thomas Cook Airlines: www.thomascookairlines.co.uk Fly from various destinations

Other Airports

Bristol International Airport is only 1 hour away, with Continental Airlines flying direct from the States as well as EasyJet low-cost airline providing flights from Europe, including Germany, and within the UK.

Birmingham, Manchester and London Airports (Heathrow, Gatwick, Stansted and Luton) are also all easily accessible to Cardiff by high-speed InterCity train or coach.

Bristol: www.bristolairport.co.uk

London: www.baa.com

Birmingham: www.bhx.co.uk

Manchester: www.manchesterairport.co.uk

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GENERAL INFORMATION

Passports and Visas

If documentation or a letter of confirmation is required in order to attend the event, please contact the workshop organiser for support of a visa application. Useful information about the documents needed to enter the United Kingdom can be found in the homepage of the UK Home Office: http://www.homeoffice.gov.uk/passports-and-immigration.

Transportation

Cardiff City Council provides an extended list of transport and travel directions to Cardiff at the following link.

Currency

The official currency in the UK is the Pound Sterling (GBP). Usual credit cards (Mastercard, American Express, VISA) are accepted in hotels, department stores and restaurants.

Timezone

July in Wales is sometimes unpredictable and it can be quite rainy. Participants are advised to check the actual weather conditions on http://uk.weather.com.

Electricity

Power supply is 230 V AC, 50 Hz. It is recommended to have a suitable plug-in for British standard.

Liability

The Organising Committee does not accept liability for personal medical expenses, travel expenses, losses of whatever nature incurred by participants and/or accompanying persons. Participants should therefore make their own insurance arrangements.

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Visiting Cardiff and Wales 

Cardiff is the gateway to Southern Wales, with stunning country side and pristine National Parks only a short journey away.  The Welsh capital began life as a Roman fort, and the whimsical 11th-century Cardiff Castle stands on the same site. The modern city is a burgeoning center for art and music. Excellent restaurants, lively bars and hip boutiques line Mermaid Quay along Cardiff Bay, and a collection of cosmopolitan hotels are clustered in the city. The National History Museum, detailing the country's social history, is Wales' most visited attraction. Cardiff is an excellent base for exploring South Wales.   


Find out more on tourism in Cardiff and Wales