This page contains links to You Tube and website videos which provide first hand information on the work being done in paediatric palliative care around the world and the effect this has on the lives of life threatened and life limited children and their families.
A typical day in Community Paediatric Palliative Care
This short film follows Community Matron Bernadette through a typical day, supporting children and young people living with life-shortening conditions, visiting a family in their home and Richard House children's hospice.
LIFE Before Death Project
LIFE Before Death is a documentary project supported by the Lien Foundation, the IASP, the Mayday Fund, the UICC and the Institute for Palliative Medicine at San Diego Hospice.
The 50 Short Films produced will be released at a rate of one per week for a year. They were filmed in 11 countries in North America, Europe, Asia and Africa to gain a broad cross-sectional view of the issue of pain. Over 150 individual health professionals, cancer, HIV/AIDS and chronic pain patients, family members, activists, bureaucrats, regulators, pharmaceutical industry representatives, ethicists and law enforecement officers over a perios of 18 months were filmed.
The MEDIA DOWNLOAD section of the LIFE Before Death website has high-resolution images of Palliative Care in action for free download.
Link: http://lifebeforedeath.com/movie/training.shtml
Treat the Pain
A new wesite offers extensive information regarding the current state of pain treatment around the world, methodology, user generated content, videos, upcoming events, resources and a blog.
About Kid's Pain
A short YouTube video on the use of a pain pump and a non-drug strategy for dealing with pain.
Pain Management in Children
A short YouTube video from Nursing Care for Children on pain management and assessment. It talks about the 6 rights, these being:
The right drug
The right dose
The right route
The right time
The right child
The right to refuse
The Myths about kids and pain
Dr Katie Larkin talks about myths about kids in pain.
Myth 1: Children will tell you when they are in pain
Myth 2: Children who tell you they are in pain but don't appear to be, don't need medication
Myth 3: Children neither experience nor remember pain to the same degree as adult
Help kids cope with painful procedures
Teri Reyburn-Orne and Erin Sinnema from Cardon Children's Medical Centre in Arizona talk about strategies to help children cope with painful procedures.
Sibling Voices
Sibling Voices was created by and for siblings who have a brother or sister with cancer; and as a way to inform parents/guardians, educators and others about the sibling experience.
Having a child diagnosed with a life limiting illness
Dianne Gray talks about loss of a child to a terminal illness at the annual Association of Death Education and Counseling (ADEC), 2011
Planning further treatment following a PICU admission in a child with a LLI
Teenage cancer - Discussion of end of life care options with young person and mother
Treatment options for neonate with severe birth asphyxia
View the above training videos by following this link on the NHS Education for Scotland website:
Do teddy bears go to heaven?
A French documentary based on an original idea by Dr Anne Auvrignon, Marie-Chistine Pouveroux and Guénola Vialle that takes a sensitive and honest look at questions families face at the end of a child's life. In an attempt to mitigate the loneliness of families confronted with the death of their child and break down certain taboos, four families, along with the medical teams who supported them, have generously agreed to share their experiences in this documentary. Among the questions asked is the choice of whether the end of life should be at home or in hospital.
Documentary available with English voice-over and sub titles. Order your copy at www.advita.com
